View Full Version : Sad news
smithr
11-09-2005, 02:45 PM
My son was diagnosed with Crohn's disease last month. It is an inflammation of the bowel disease that they don't know where it comes from or how to really cure it. He is 15 and could be faced with a life of problems and pains. Please pray for a cure and the best possible outcome for him and about a million others suffering from it. www.ccfa.org if you would like more info.
kevinito
11-09-2005, 02:48 PM
My prayers are with your son and your family.
Will do. I know four people with the disease who live very full lives with the occasional time-out for flare-ups. Best of luck to him.
Snoopster
11-09-2005, 03:20 PM
I too know a special TWT someone who lives with this. Maybe that person might want to share their trials with you???
Squeaky
11-09-2005, 03:30 PM
I too know a special TWT someone who lives with this. Maybe that person might want to share their trials with you???
I would love to talk to you and/or your son about it if you want.
I was diagnosed with Crohn's in 2000, and I've had... hmm, lots of flare-ups. :-( Nothing (yet) that has required surgery, but we've not ruled out that possibility in my future. Hospital visits aren't as scary as they used to be, and I've learned which drugs work and which don't.
My brother's friend was diagnosed as a young child (5yo), and it has been more extreme for him (it tends to be more extreme cases when it's young children). He had part of his intestine removed in junior high, but has avoided surgery since.
Don't let it stop his life. Let it inspire him to do things he might not normally do - like learn to ride! That's what I did! ;-)
RogerAtx
11-09-2005, 03:46 PM
My sis has that too. Not pleasant, but she deals pretty well, and just accepts she's going to have her bouts sometimes. She was freaked at first, but she adjusted.
I hope your son does as well as possible, and barring the hoped cure, is able to adjust as well. Though not having dealt with it myself, I had a go-around with the big C last year which was no fun either. Not directly relevant, but what I mean to impart is that you can get through some pretty serious stuff, and go on leading an otherwise normal life, more or less. I've had the best times and outlook after the big scare. Sometimes these thing, without sounding all corny, do make us stronger. I dealt with it by allowing myself about 10 trackdays in the last year, vs only one other ever. Treat your son and help him as you can. It sucks, but you can come out OK. I promise.
Great words folks. I'm sure they help.
Rebecca, you have to be the very BEST! Jumping in there and offering first hand experience support... YOU ARE A CHAMPION! My most positive regards and respects.
Grumpy
Squeaky
11-09-2005, 03:57 PM
Oh, and I regularly donate to CCFA (Chrohn's & Colitis Foundation of America) and I encourage my family and friends to do the same. I am hoping that they'll get closer and closer to a cure. Or answers. Or advanced treatment methods. Or awarenss....
smithr
11-09-2005, 04:05 PM
Thanks everyone. Rebecca thanks for the offer, just remind me I owe you a hug next time we meet. I am dealing with it much better this week then I was the first few. He has had a hard life from day one and just wish he could have a normal life... whatever that is. He rides with me a lot normaly maybe he will be there also.
Rocket_Cowboy
11-09-2005, 07:11 PM
Bob ... I feel for you and your son.. My father also has Crohn's, and has had a few flare ups bad enough to require surgery. He had more flare ups earlier this year when his father passed away, causing him to need to be hospitalized for a couple weeks. In general, they seem to be able to treat it fairly well with medication.
My prayers are with you.
mary111
11-10-2005, 07:49 AM
Way to go, Squeaky ;-) I would love to talk to you and/or your son about it if you want.
I was diagnosed with Crohn's in 2000, and I've had... hmm, lots of flare-ups. :-( Nothing (yet) that has required surgery, but we've not ruled out that possibility in my future. Hospital visits aren't as scary as they used to be, and I've learned which drugs work and which don't.
My brother's friend was diagnosed as a young child (5yo), and it has been more extreme for him (it tends to be more extreme cases when it's young children). He had part of his intestine removed in junior high, but has avoided surgery since.
Don't let it stop his life. Let it inspire him to do things he might not normally do - like learn to ride! That's what I did! ;-)
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