That has been my whole life in a nutshell... I know some people that act like they have a VERY specific plan and they always know exactly what is next. My life has NEVER been any thing like that. So I do what your sig line says and hope for the best...Sure would be nice to know what it is, 'cause right now we aren't exactly singing from the same sheet of music, he said as lightheartedly as he can. As a musician I would sometimes get lost on the page. Maybe he'll point me to the right bar soon. I guess that's what prayer is for.
You're not showing any signs, IMHO, of anything. You seem plenty sharp to me!Well, I think I may have gotten some good news. My initial appointment at UTSW was not going to be until next month, but I got lucky and someone canceled so I was able to be seen last week. The doctor there took the diagnosis of Front Temporal Dementia pretty much off the table. That is such a debilitating diagnosis with few if any treatment options, that any distance I can get from that is welcome. He read the MRI much differently than the neurologist that I saw here locally and took the time to show me what he would have expected to see with that diagnosis and what he wasn't seeing. His reading is much closer to the radiologists, so I'm inclined to be hopeful. I must say my attitude is much improved.
So what is wrong? I dunno. Alzheimers is still on the table, but there are some early test results that may be pointing in different direction. One way or the other it may be a complex issue to diagnose and treat and I'm certainly not out of the woods yet.
In the meantime my cognition is still good, but my speech increasingly has a halting pattern and I have trouble recalling words sometimes or I use the wrong word. I'm also very tired and a bit jittery but I'm still in the fight.
I was going to start a thread to discuss some of the issues, but I was afraid that it would become maudlin and also to be frank, I've been very busy. This has reordered my priorities in a big way. I have several things that are not finished on this property, and I'm going to try and make sure they don't get left that way.
In the mean time, thanks for reading and caring and any prayers you have time for, I'd be happy to have you say. There's still a ways to go on this I think.
Better yet, you should come work on my property!Keep working on your property. That’s therapy for the soul and mind.
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I'm assuming your Neuro ruled out a stroke or TIA?In the meantime my cognition is still good, but my speech increasingly has a halting pattern and I have trouble recalling words sometimes or I use the wrong word. I'm also very tired and a bit jittery but I'm still in the fight.
I wasn't aware of the statin side effects. Here's what Mayo has to say about it:It appears my earlier smack on the head and statin use had a side effect.
I don't think he's ruled much of anything out except for the original diagnosis. I think it's quite possible that I had a mild stroke, but they don't leave much evidence. I also consider that there could be more than one issue as I had a sudden onset of symptoms in July to September, but I've had some issues that have been going on for years. The speech problem had slowly developed over years, but had a sudden spike and I've had significant issues with fatigue for years.I'm assuming your Neuro ruled out a stroke or TIA?
I had a bad time in September. I had a spell with real cognitive problems such as logical errors, confusion while driving and making mistakes while keeping up our finances. The first neurologist put me on a "memory pill" called donepezil. I panicked, and at the same time I started that I quit the statin I was on and the beta blocker for just that reason. I also asked for prayer in that time period and I did indeed improve. The efficacy of all of those things seems to be roughly equal. My current Doc is not a fan of doing multiple things at once. Neither am I, but was concerned and wanted immediate improvement. He has asked that I stop the donepezil and I will in a week or so, but it's a bit of a scary proposition. I don't think he puts much stock in the stuff, but he didn't say that. We'll find out I guess.A few things in my history come to mind while reading your story. At nineteen, I was T-boned at an intersection which rolled the ‘67 VW I was driving. My head was like a pinball, smashing into the rear view mirror, windshield and door pillar. The car came to rest upside down in the oncoming lane. I thought the most damage suffered was some deep gashes in my forehead and scalp, plus a lot of glass embedded in my cheek and eyebrows.
Fast forward a few decades and due to high cholesterol, I’m prescribed statins to lower it (first Lipitor, then Crestor). After a couple years of taking those drugs, I developed anomic aphasia, very similar to some of your symptoms. It appears my earlier smack on the head and statin use had a side effect. I’m now on Praulent to reduce my cholesterol and don’t have the issues I once experienced. No telling what the long term effects are going to be, but for now I’m much better.
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Jorge brings up a good point. Brenda's therapists were all about her doing as much as possible to keep her mind active: Sudoku, crossword puzzles, keeping a written journal; anything that would keep her mind challenged. I found Lumosity to be good as well.but I read and listen to many audio books. And all I can say is that you have a bright and educated brain
You keep busy
Interesting verse. I also find myself reading 2 Corinthians 12 a great deal. I only hope that I'm not seen as double minded....
Praying for wisdom for you Mike (James 1:3-5) also for me.
Not at all double minded. To ask for His wisdom is single minded in knowing, I can't do this alone, and receiving God's strength knowing His grace (unmerited favor) is sufficient. 1 Peter 5:7 is powerful, especially if the cares are seen as thorns and realizing, the crown Jesus wore on the cross, for you and anyone else that rests in his finished work. He said it was finished, and I say amen (so be it). That is why as you mentioned in 2 Cor. 12, the apostle Paul in his weakness and imprisonment could declare, No matter what, your amazing grace is sufficient. I picked this up at Walmart I think it is newer. It so depicts faith in God and wisdom he gives us. I really enjoyed DVDInteresting verse. I also find myself reading 2 Corinthians 12 a great deal. I only hope that I'm not seen as double minded.
I have considered CBD. There are others on the board that have taken it with some fairly good results for various things. It's on the table for sure.
I have enjoyed RC Senior for many years, have many of his books and audio/video lectures/sermons. It was a sad day when he passed away.Prayers mike.
I recommend renewingyourmind.org And get daily teaching via email from RC Sproul and others from legoniers Ministries. And the refnet app. The biblical growth and teaching from these sources has been a God send.
Of all things, Coconut oil is supposed to be a big help. There are numerous books and articles about it. Mom's sister would take two tablespoons of it each morning.
On January 1, 2013, I was over 405 lbs. and decided to make some changes. I've lost and kept off about 130 lbs. so far. Hoping to lose some more, but you know how it goes.Yeah, I have done a good bit of the KETO thing myself. As Fred mentioned above, I limited my daily carbs to 100g per day, which is NOT an easy thing to do.
If I do go "off the wagon" and start getting too many carbs I can feel it pretty quick and it isn't pretty. If the reflux starts coming back, that is a good indicator that I've been slipping and need to get back to paying attention.
On January 1, 2013, I was over 405 lbs. and decided to make some changes. I've lost and kept off about 130 lbs. so far. Hoping to lose some more, but you know how it goes.
Reposting this info as it was an eye opener for me personally:
Thanks, I'm not sure all would agree, but the words are appreciated.I’m glad you Came back with an update full of good and promising news
Hard to believe you having any kind of problems with your mind or brain
Your writing is excellent plenty of vocabulary and zero gramatical errors
I’m not expert and English is my adopted
Language, but I read and listen to many audio books. And all I can say is that you have a bright and educated brain
You keep busy and we’ll keep praying.
Blessing to you and your family.
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...Eliminate all added sugar from your diet
Consume 100 grams or less of carbs per day. Your carb source would be mainly from vegetable sources. All bread and corn products are deleted from your new lifestyle.
I actually reduced my sugar intake recently and I think it was after seeing Jarrett's original posting of that. I have improved a bit since then and I've lost about 20lbs. The loss is from a change in appetite as well as the sugar, but I bet most of it is the sugar. I should reduce it more, but it will be difficult....
Reposting this info as it was an eye opener for me personally:
I recently watched a movie about Paul. I need to look and see if it was the same one. I also have several things cued up on Netflix that are biblical. I doubt I will ever have his strength of character even considering his early tribulations. I don't watch a great deal of anything on the TV and I use closed captioning when I do.....That is why as you mentioned in 2 Cor. 12, the apostle Paul in his weakness and imprisonment could declare, No matter what, your amazing grace is sufficient. I picked this up at Walmart I think it is newer. It so depicts faith in God and wisdom he gives us. I really enjoyed DVD
I actually watched the whole thing and found it quite compelling.
Thanks, that means a lot. I'm kinda fiercely independent and I hate asking for help, but this is bigger than me. I"ll take all the prayer I can get.... I guess I would just say, don't give up hope. A lot of folks here are praying for you.
The stuff about baby formula was a real shocker to me when I first saw it. I wish I had seen it when our kids were bottle feeding. We did breast milk for them as long as we could and tried to minimize formula anyway, but had I known what he talks about in the video, we probably would not have done any at all. There's nothing like getting them hooked at an early age!I actually watched the whole thing and found it quite compelling.
Interesting video. I was thinking the same thing about the formula.The stuff about baby formula was a real shocker to me when I first saw it. I wish I had seen it when our kids were bottle feeding. We did breast milk for them as long as we could and tried to minimize formula anyway, but had I known what he talks about in the video, we probably would not have done any at all. There's nothing like getting them hooked at an early age!
Understand. Glad to hear things are looking up for you.I have to think that prayer works. I just finished two of the best weeks I've had out of the last three or four months. The Lord knows it's not due to the great medical care I've been receiving. Even though I am not totally without issues, I felt confidant enough that I executed my original long term plan to buy a new truck. I sure hope that doesn't turn out to be a poor decision. For now I'm still very functional and I will try to live the life I planned as long as I can.
That may be a long time - or it may not be. I currently have no diagnosis and won't have for at least two months. My experience with the Medical Industrial Complex has been frustrating to say the least. Symptoms come and go, but have all been manageable for now. Your prayers have been and are appreciated, and the Lord knows I won't turn any down. Happy new year to all.
I use Austin Regional Clinic. My Physician and I are friends when I go see him. Last time he changed my blood pressure medicine and said, if you want cutting out salt will help along with exercise. Having a good physician that you can talk with and really cares helps a lot. The clinic is good but I go because of the doctor and treats me like a person. Soooo I am not making a new years resolution, but a new years revolution. I plan to defeat my minds stronghold and bent toward salt and sugar and dislike for regular exercise. My battle plan is knowing that I am a spirit (inner man) that is possessing a soul (mind, will, emotions) that inhabits a body which is my lease to earth. I want to buffer my flesh not buffet it and not use a pill to do it, but gos-pills. Can I get off blood pressure pills that warn against kidney and liver failure? I been on them twenty years and I read between the lines of what my doctor friend was saying to me.Tell me who's better; I'm all ears.
I'm normally a kinda private person when it comes to my personal issues, and I hate asking for help, but I'm in a situation that may be bigger than me.
I don't mean to be cryptic, but the truth is I really don't know what's going on and likely won't for a week or so. I'll let you know when I do. I'm not looking for a lot of responses or calls, but if you are a prayerful person, I'd appreciate yours. Healing. clarity, focus and peace I guess is what I'm asking for.
One of the things that has really kept me engaged here is the Christian nature of many of the members here. Several of you set a fine example of being good Christian men and I can't think of people that I would rather have speaking for me.
Raptor? Do it...I have to think that prayer works. I just finished two of the best weeks I've had out of the last three or four months. The Lord knows it's not due to the great medical care I've been receiving. Even though I am not totally without issues, I felt confidant enough that I executed my original long term plan to buy a new truck. .
Crew Chief, do you recall the first words you said to me? The first time I came to Burger Box, the first thing I heard was you in a loud voice saying “We don’t allow no scooters in here.” As you said this, you stood up and for a moment, I thought I had made a mistake in coming. You were actually standing up to get me a chair. I have enjoyed getting to know you and pray that you have many healthy years ahead of you. You’re my favorite person to start a Ruckus with. Whatever this illness is, keep fighting. I’ll be cheering and praying for you.
To quote Simon and Garfunkel's first line from the song "The Boxer"; I am just a poor boy..... It is a lowly Lariat. The Raptor's and Platinum's poor cousin. It was at Burger Box Friday night.Raptor? Do it...
Just to prove I can with the new software:Post a picture of that new truck when you get it. I put a Leer camper shell on mine and it comes in mighty handy.
To quote Simon and Garfunkel's first line from the song "The Boxer"; I am just a poor boy..... It is a lowly Lariat. The Raptor's and Platinum's poor cousin. It was at Burger Box Friday night.
In my world this was a real extravagance. Although it was a planned purchase, I'm not certain it was the right thing to do under the circumstances. Sure enough, since I executed that deal and said I was better, I've had a couple of issues yesterday and today. Nothing too bad, but not comforting either. My cognition is not affected so that is a positive. One thing is certain, I won't be turning down any prayers anytime soon.
Its a great looking truck. I can hear it screaming "lift me and get me 35's" from here.